Wednesday, January 20, 2010
Gastronomic Tour of beautiful France
Monday, January 18, 2010
Continues to do well
Tuesday, January 12, 2010
Wow!
Wednesday, June 17, 2009
End of Year Pics
Saturday, June 13, 2009
Why.. How .. I know!
Why does some days seem like it can't get much worse..
Why was I the chosen one..
Why do we have love ones taken from us..
Why does death even have to exist..
Why do some days I just want to throw my hands up in the air..
Why do I wake up some mornings and wonder what will the day bring..
Why do I smile and let everyone think I am okay..
Why does life have to be so hard somedays..
Why does everyone ask "I don't know how you do it alone"...
How do I tell my daughter that it will be okay someday..
How do I tell myself that it will be okay someday..
How come I am hurting so bad inside that I fear each day another love one will be taken..
How do I know that the choices I am making for my kids are the right one..
How do I make the best of each day..
How come I am even asking all this... I KNOW
I know the last few weeks have been very busy which is why I haven't posted..
I know some days are pure hell, but someone always has it worst..
I know I was chosen because I have faith..
I know we have love ones taken from us because angels are always needed to guide us..
I know death exist because everything has a beginning and an ending (it just might not be to our liking)..
I know I throw my hands up in the air because I am really asking the Lord to give me more patience which He does..
I know I smile and let everyone know all is okay because really deep inside me it is..
I know life is hard sometimes because it would be boring if it wasn't..
I know people ask because they are amazed at my abilities to do it alone..
I know my daughter and myself and everyone else that has lost a love one will be reunited one day and our love ones have opened our hearts to know what true love is and we get to live each day remembering this and passing it on to others..
I know I am hurting so bad inside because if I wasn't that means I never loved..
I know my choices for my kids are coming from my intuition and love that I have for each and everyone one of them..
I know I make each day the best I can because tomorrow might never come..
I know I am asking all this because I am human..
Friday, May 15, 2009
President's Education Award - Academic Excellence
What a fine achievement!
Sunday, April 26, 2009
Fun Saturday
Saturday April 25 2009 was the 3rd Annual Sesame Place day for children with Autism which was sponsored by Variety - the Children's Charity (Philadelphia, PA) and what an awesome day we had. The boys were a little hesitate about going because they were big boys and not preschool kids. When I told them we were going they thought about Big Bird, Elmo, and all the other characters and they would be the only 11 year olds there among all the preschool kids. My daughter jumped on the idea of going (after a lil' white lie had to be told). There was such a wide variety of ages one didn't even realize we were at an amusement park geared toward the younger generation. The temps made it into the high 80's and the water rides were open which made this trip much more enjoyable (although the water was colder than ice if that is possible). We only made it on one dry attraction and the rest of the time was spent in the water park. The clip above was actually suppose to be still photos. I took the pics thinking they would be still photos not realizing my daughter had her camera set for video. After a few editing techniques in Windows Movie Maker, I was able to pull all the 'pictures' together.
What is even better is we get a return trip free of charge through June 21. I am excited to return as are the kids as the water hopefully will be much warmer.
Sunday, April 12, 2009
Happy Easter
Easter - 2002
D - Easter 2002
D - Easter 2009
M- Easter 2002
M - Easter 2009
Easter Bunny is coming!
The pagans hung on to the rabbit and eventually it became a part of Christian celebration. We don’t know exactly when, but it’s first mentioned in German writings from the 1600s. The Germans converted the pagan rabbit image into Oschter Haws, a rabbit that was believed to lay a nest of colored eggs as gifts for good children.
Oschter Haws came to America with Pennsylvania Dutch settlers in the 1700s, and evolved into the Easter Bunny as it became entrenched in American culture. Over time the bunny started bringing chocolate and toys in addition to eggs (the chocolate rabbit began with the Germans, too, when they started making Oschter Haws pastries in the 1800s).
END OF LESSON: TEST NEXT WEEK
Boys are snoring away – and they better continue for a long time since it is only 3:30 am. And I believe I better get myself to bed so I don’t scare the Easter Bunny away. And yes, we left carrots and water for him to refresh up before he goes hopping into another home. Be back soon with pictures.
Sorry for the history lesson. Just couldn't sleep and needed something to do.
Saturday, April 4, 2009
April Fool's Day
The first memory that comes to life - and I mean come to life - as I can see, feel and smell this prank. You will understand the smell part in a minute. We were living in NC at the time and my two older kids thought it would be so cool to prank mom out. They set up this prank the night before to catch me off guard first thing in the morning. But the morning was much earlier than all expected. I woke up around 2 am with the worse stomach cramps. Rushing to the bathroom doubled over, I sit down on the jon and expel what was causing the cramping. OMG - but unknowst to me the toilet was saran wrapped and all that SHOULD have dropped and mixed with the water in the bowl was now mixed all over me. I am sure C and J would of loved to see my reaction - well maybe they wouldn't have cause my demeanor wasn't something they would of liked. The smell was notorious - showering at 2 in the morning wasn't what I expected especially when not feeling well. I am sure this prank will never be topped - but then again, I won't put it pass C and J to try something else.
I have this serious sensory issue (if you want to call it that) with cotton balls. I CAN'T stand them, the feel - the sound of rubbing it together etc. I will go to all lengths not to touch it if I can. But that didn't matter to my dear neighbors in NC. They went to all lengths to cover my top sheet of my bed with cotton balls and remake the bed so I wouldn't notice. That night as I readied myself for bed I threw back the covers and I am not kidding - there had to be hundreds of cotton balls that needed to be plucked from my bed. I can still see myself freaking out to this day. I visioned myself having to remove each cotton ball one by one just to get to sleep. I started removing them with a pair of tongues (what you use to grab hotdogs with) but then realized it would take probably all night long to toss each one into the trash. I decided to just shake the sheets out and vacume them up. If I remember right it was over a month later that I continued to see a cotton ball here and there - kind of like those Christmas tree needles we find 6 months later still scattered throughout the house after the tree came down. That is how it was with the cotton balls. I vowed never to buy cotton balls again!
Paybacks are hell -- someday .........
Friday, March 20, 2009
Free Giveaways -
http://www.5minutesforgiveaways.com/
Definitely check it out!
I am currently trying to win the Crayola Timer Light Toothbrush: Info from their website:
"This product is the Crayola Timer Light Toothbrush by the Sunstar’s GUM® brand. The toothbrush comes in fun colors of blue, red, green and yellow, and in the shape of a crayon. When the button on the bottom of the toothbrush is pushed it activates a light that flashes for 60 seconds to encourage children to brush longer.
Recommended by dental hygienists, the toothbrush is said to increase brushing time with the help of its flashing light. The brush also has a suction cup base, which not only makes it fun to stick in a million different places, but helps to keep bristles clean.
My four year old was so excited to try this new toothbrush out that he jumped off his bike, ran into the house and hollered for me to follow with it. He proceeded to load it up with tooth paste, easily turned it on and brushed for the entire 60 seconds. I practically had to drag him away from it. Really!"
Getting the boys to brush without a hassle - is it really possible????? We are currently using a product that turns their teeth blue after they rinse with it and they got to brush til all the blue is gone. We have using it for about 2 weeks now and it is starting to work a bit better. We get in almost 1 minute of brushing each time.
Friday, March 13, 2009
One Step Forward
I was told this week there is a good possibility if M was diagnosed appropriately at an earlier age he probably would have been labeled autistic – a much lower functioning individual. Well, that is both good and bad news. The good news is his Asperger’s diagnosis only came two years ago so I must have been doing something right to have his diagnosis of Asperger’s now after struggling for 7 years without knowing anything. Meaning that the treatment I was giving him at home without any knowledge of autism literally helped M otherwise he would still be non-verbal, everyday 3 to 4 times a day raging, etc. I look back on all the doctor appointments I had for his behavior problems and it was literally written in black and white (testing, evaluations, assessments, doctor reports etc) all the typical symptoms of a autistic child but for some reason it just wasn’t diagnosed as such. (He was being treated psychologically for his behavior since age 4 and not for autistic behaviors (He is now age 11). The two are really different because I truly believe an autistic child does NOT have a behavior disorder but acts out in a behavioral way because of sensory issues). The two are treated so much differently. I pat myself on the back for the effort I have put forth to get M to the point he is now. I am no way saying that M does not have behavior difficulties, but I think the way they were being targeting should have been redirected in a different way. The bad part of that statement is M could have been receiving much needed treatment in an autistic way and we could be beyond the challenges I currently am enduring. But that is neither here or there now and hence the reason why I say one step forward. His disorder is now more recognized both at the school and in therapy and treatment is being adjusted accordingly.
M has been discharged from physical therapy as the therapist strongly feels that most of his struggles are more related to sensory issues. I am still learning everything about sensory issues and to help us all we have increased his occupational therapy to twice a week. When M would cover his ears and scream during a fireworks show, thunderstorm, really struggle during a trip to the carnival that is supposed to be fun, a trip to the grocery store more times than I can count ended up walking out because of him raging, eating at a restaurant and having difficulties, purposely throwing himself down on the ground, walking into the walls, having a meltdown because the cereal he would eat everyday wasn’t replaced when we ran out, wants to wear 7 shirts and hoodies to school, walks on his toes, could not grasp how to tie shoes or color within the lines – and the list could go on and on – all this is due to sensory issues which is very common in children on the autistic spectrum. With the increase in OT and goals to work toward, I really feel all this is one step forward that will be bringing M more in touch with his needs and allow for his outburst to seek these needs to be diminished significantly.
Monday, February 23, 2009
ASD - Being Literal
Bringing groceries in from the car and a new tenant is moving in carrying his boxes to the door. M being the caring person runs ahead and holds open the door for all of us. We all meet up at the door. I say hi and introduce myself. He replies: Hi, I'm Rich. My lil' polite boy returns saying: Oh My mom likes rich men.
Just imagine my embarrassment.
Saturday, February 21, 2009
Today is tough.....
My beautiful grandson - August 26, 2007 - December 27, 2008
(16 months) Earned angel wings due to Krabbes Disease
My mom - July 8, 1938 - August 3, 2008
(70 years old) Earned angel wings due to cancer
My brother - October 28, 1958 - November 6, 2006
(48 years old) Earned angel wings due to massive heart attack
My dad - July 9, 1933 - April 25, 1988
(54 years old) Earned angel wings due to complications from open heart surgery
I don't have a pic of my dad on the computer or I would add him also.
I have so much to get done today and I just feel blah. I know it's okay to be missing all but why today. I want to so much crawl back into bed, throw the covers over my head, and fall into a deep sleep and when I wake my mind will be thinking differently. But I can't -- boys need pet supplies, I need food, I have about 4 loads of wash to do, cleaning, a bike to fix (and hopefully D will ride it today and not feel dorky in his helmet), I have a PSP to fix as M got a new memory card and wants everything transferred from his old memory card onto his new one, I have a web page to update for a client. I guess I better get a move on. I just wish I felt better.
Thursday, February 19, 2009
I'm the meanest mom around....
Thursday, February 5, 2009
I watched CNN's report on Autism (click to read) and it literally brought tears to my eyes. When Mary (Melissa's mom) made the comment that really no one understands what you are going thru unless they have a child with autism is the truest words. We have the behavior consultant coming once a week and that has been a real struggle for M. Sometimes I wonder if having one come every day would be more of a benefit. This week was better than the last visit . Last week he was literally out of control for almost 3 hours and this is with Mr. S (behavior consultant) trying to work with him to calm him down. Hopefully this week is an indication that each week will get easier. The goal is to reduce his negative behavior by providing more positive reinforcement and for me to recognize his cues when frustration levels are increasing.
Sunday, February 1, 2009
Snow or Rain?
Thursday, January 22, 2009
Itty Bitty Time Out
No entertainment in the bathroom for me (unless.. well use your imagination). But omg, I can't even go to the bathroom or take a shower without someone knocking on the door or calling me from the other room. So where should my itty bitty timeout be? In my closet, downstairs in the cold laundry room, under my bed ... or maybe I should take this advice:
"I once knew of a mom that bought a wild-looking red bath robe. The rule was when mom came out of her room with that robe on, no one was allowed to ask for anything unless the room was on fire".
If you have a suggestion on where I should give myself itty bitty timeouts, please comment and let me know. If it works I will be sure to post. Well off to another day at work.
Tuesday, January 20, 2009
Day in history
- M's frog peed in his hand while holding him for the first time today
- I was up at 3 am and for the 1st time actually got back to sleep quickly (even if it was for a short time)
- For the first time I had BOTH boys help clear off my car of snow WITHOUT any fighting (Now mark that down in history)... ha ha
The day isn't over so I am sure there will be even more 1st for this family in this day in history.
Sunday, January 18, 2009
Hmmm
Saturday, January 17, 2009
INTRO TO GANG
M has been dx'd with Asperger's in early 2007 and continues to be dx'd with ADHD. I have always loved challenges and believe me he gives me a few challenges each day -- yea, some of them I want to pull all my hair out -- but to date -- i still have all my hair. Amazing isn't it! Since an accurate diagnosis I have been able to get an IEP rolling at school and only this year am I able to really start evaluations/services that will benefit him greatly with his stuggles related to Asperger's. In matter of fact, toward the end of this week he will be evaluated for OT and PT which I am hoping will help with his small motor skills including feeding struggles, gross motor skills, and several sensory issues. We just started with a behavior specialist consultant and I am hoping thru his ABA training that issues we have at home will become much more manageable. I will keep it updated.
D is my typical all-american boy. He loves the outdoors and if I allowed him he would set up tent and live outside. He probably spends a good 80% of his day outside ignoring temperatures even when they are below 32. He does well - extremely well in school. I sometimes wonder if he has any issues but to date nothing has been diagnosed. He has been tested for ADHD and I am being told he has nothing going there. I think most times his behaviors are related to trying to understand his twin brother and learning to accept/deal with his behaviors . D & M are as different as night and day as I tell others. Literally all the way to their blood types being different. From being dark curly hair to M being straight blonde as toddlers.
J is in his first year of college and seems to be enjoying it. Although this year has been in his words too easy as he took the courses in his tech school just two years earlier. He is hoping to go oversees to continue his schooling - I believe he said France. He has his own 'pad' and has really matured over the last year.
C I have mentioned a few times in these blogs. I am really anxious to see how this year unfolds for her.